Saturday, November 29, 2008

welcome

Oh, what a long, strange trip.

T had an intestinal bug last week that was manifesting in yucky loose stools and diarrhea (sorry for the info but it does play a role in the story!). I got it right after he had it and spent much of Thursday and Friday on the couch. On Saturday I went to my chiropractor in the morning and came home to nasty diarrhea... and contractions. Since they kept hanging around I put 2+2 together and called my midwife to ask whether it was possible that being sick could send me into labor a la taking castor oil. She said that it wasn't ideal (well, duh) but possible. I called my doula to let her know. She told me to go nap. I tried but wasn't really successful. T went to my mom's that evening and my doula came over. Things continued to intensify. My doula encouraged me to sleep and I tried but it's hard to wake up to contractions; you're already into one and can't prepare yourself for it. Nibbled toast, oatmeal, drank lots of water and gatorade... next day they were coming along fairly regularly, I was walking in circles around the downstairs, had to stop and get through each one. I eventually said that we had to leave because I was dreading the car ride and just wanted it over with. Had 5 ctx on the way to the hospital. Got there around 12:30ish I guess, was 100% effaced and dilated to 3, bulging waters. Kept on laboring, dilation stalled out. I let her break my membranes around ... oh, 7 or so? - I don't remember - the ctx got so amazingly intense then. (Remember I have been in labor now for about 29 hours.) At 33 hours I had dilated to 6 but the contractions were so painful that I was having trouble getting through them, so I made the decision to have an epidural. My body was going on very little fuel (although well hydrated) and very little rest. I responded to an epidural the same way that I did last time - my bp sank to the 80s over 30s - which caused baby distress, but they caught it. The plan then was to try to get me to dilate fully with a low dose of pitocin - the contractions by themselves were not strong enough anymore to make my cervix do anything - but baby also did not tolerate the pit well, so she turned it off and said we could try again in 1/2 an hour, to which my gut said no, bad idea. So I told her that we just had to do this surgically, because I was having a very bad feeling about the pit and the baby and I wasn't toying with it anymore.

Because I made this decision myself, for the safety of my child and after having given myself an amazing chance to do it myself (35 hours? you think that was long enough?), it does not hurt emotionally. I do not feel like I have been robbed of anything. It is a very different feeling than my last surgical birth. My midwife was wonderful and respectful, my nurse was fantastic, my doula deserves a very special place in heaven, my partner was not freaked out. Even in the OR I was treated very respectfully, covered with warm blankets, had my hands unstrapped when I asked, and Jo and baby were allowed to come sit right by my head after he was born and stayed for at least 20 minutes. I truly believe that because of this, I never had the chattering teeth that I had with T that lasted through surgery until he was put into my arms about an hour later. Jo and E just sat next to me, I gazed at him, he looked around, very calm and mellow. His apgars were better than T's, 7 and 8.

He lost his points on his apgar due to body tone, one of the characteristics of babies with Trisomy 21, or Down Syndrome, which surprised us all. Our chromosome test was confirmed today, but by now, none of us were expecting any other diagnosis. He most certainly has Down Syndrome. We have been spared an incredible concern in that he does not have any heart defects that are typical for up to half of babies born with DS, and does not at this moment have any great health concerns. Indeed, right now all we have to do, the ped said, is make sure he's eating and excreting. The eating is a hard one; he is very interested in breastfeeding but he has a poor latch, very weak suction and a major tongue thrust, and of course there's me and my abysmal milk supply... a poor set-up for successful breastfeeding but you know what? can you believe this?: I'm over it. I'm so over it. I know that breast milk is good for him and nursing would be good for strengthening his mouth and helping him organize his suck and swallow, but if I have to feed my baby with a bottle, formula and as much as I can pump, so be it. My neighbor who just had a baby is also pumping for me, a couple of ounces every day, and it is just fantastic. I am not going to stress out over it. I have bigger fish to fry.

The emotional ramifications of the whole thing are mind-boggling. At times I am full of awe and honored that he/his angel/God chose us to parent him, and at other times - when I am tired, especially - I am bitter and angry. I am not bitter and angry at him - who could be bitter at a kid who's 7 pounds of pure snuggle power, with a head full of ash-blonde hair? - just at the universe for giving me this challenge when it would seem that it would have been just as easy to grant me an ordinary child with the correct number of chromosomes. But who am I to try to understand the workings of the angels?

One day at a time.


E.W.
11/24/08 1:30 AM
7 pounds 4 ounces
19.75" long
long hair, blue eyes, 10 fingers, 10 toes, and an extra chromosome.

12 comments:

Katie said...

Hugs to you. He sounds healthy and happy. Dealing with the DS will come later. Not that I can speak from experience myself, but one can tell that your amount of love and care isn't affected one bit by his diagnosis. And that's awesome. Awesome that you have someone to pump for you (I already have two willing friends lined up for a baby that isn't even concieved yet!), he'll grow and be strong regardless of breast or bottle so long as he's fed. So much respect for you, while you may be crying a fair amount in real life, your blog-self seems collected and calm. Lots of hugs and kisses to the new one, and for your whole family - a family of 4! yay!

giggleblue said...

welcome to the world, little E.W.!!

Randi said...

I'd love to see pictures!!

Congratulations! That child will be the most amazing gift you have ever recieved.... guaranteed.

(QTRANDI from mothering)

betsyl said...

one day at a time, indeed.

he's beautiful, by the way. those little hands and their little tiny nails! (i got some pictures via your partner in my email this morning...)

Leah said...

Hugs and congrats. I'm glad you feel better about this birth than you did about T's - I know we had similar experiences there! :) We can't wait to meet little E. Much love and thanks for sharing your blog.

miep said...

can't wait to meet him! xoxx from miep, M, and the mieplet (still in utero)

Lollardfish said...

Congratulations!

My son has Down Syndrome and is turning two in a few months. His diagnosis came as a surprise for us too. I am so happy to hear your little boy's heart seems to be in good shape, as that's the biggest difference maker during the first couple of months.

I know "Betsy L" somewhat and she referred me to your blog. I'd be thrilled to be a resource to you if I can be as the weeks and months go on.

Again, congratulations and, as a wise woman once said, Welcome to Holland"!

Shannon said...

Congratulations!

I am also here because we know BetsyL and our lovely son has DS also. We had a similar time finding out as he got here.

I remember the first few days being blurry but when things clear a little if you have questions or anything please feel free to ask. Our son was also healthy except for some hypotonia and still is. He's the greatest thing I've ever seen. I hate being trite but I can't believe what a fantastic attitude he has or how much he can improve ours.

Again congratulations!

Jen said...

thanks everyone!

Kelly said...

I hope you appreciate what a warrior woman you are, Jen. I am continually confronted in my life with grave challenges that ultimately become blessings I am most grateful for-I feel strongly that E.W. will be just that for you, your greatest blessing. As for understanding angels...they must have seen a goodness and a beauty in your heart to entrust you with such a precious gift.

(darkblue from mothering.commune)

Leah said...

Hello, and welcome to the club you never thought you'd join! We live in Eagan, and my 12 year old daughter Angela has DS. She has her own blog too! www.itsmylifemom.blogspot.com

Tom P. said...

Welcome to the family. I am thrilled you found our site so quickly after your baby was born. There are so many parents who want to help you in any way we can. Don't feel bad about feeling bad or upset or angry. Just know that we know the path you are on and we want to help you enjoy the walk. All the best - Tom